Dear Eric: I had a stroke in 2017. My husband passed away in 2022. This stroke was quite debilitating for me. I could not walk, sit up or stand.
Little by little, I’ve regained some abilities through hard work and therapy. I still can’t walk at all unless I have an orthotic device on.
My husband was wonderful in so many ways after my stroke and was also a cheerleader for me. While I have some wonderful friends and neighbors in my life, some longtime friends are not kind. They only talk about all that they are doing. Nary a question about me.
It is very hard to take, to be treated as a nothing, though I am not.
Do you have advice for me or many others with disabilities whose so-called friends decide to treat them as invalids as opposed to worthwhile people with some disabilities?
– Still Here
Dear Still Here: You deserve a cheerleader, and you deserve friends who are going to show up for you.
Tell your friends what you’re not getting. Say, “When you don’t ask me questions about myself or my life, I feel invisible. I want to know that you value me, even if some of the realities of my life make you uncomfortable. Can you do that?”
Some friends, unfortunately, may show the limits of their abilities; but others can rise to the occasion if given the right coaching. This shouldn’t fall to you to do, but sometimes we have to advocate hard for ourselves.
Ali Cameron, who runs an Instagram page called @seated.perspectives, has a great post from February 2023 called “5 Ways to Show Up for Your Disabled Friends”. I reached out to her for more education and insight.
“Depending on where you are with your relationship with your disability, I would recommend finding spaces designed by and for the disability community,” she said. “You will be so welcome. This could be virtual events or in-person experiences within your own community.”
“For friends who want to do more to include their disabled friends, I recommend being proactive and taking on the labor of researching a location’s accessibility. Ask them how you can best show up for them as you plan an event. Check in with them in social settings to make sure they’re comfortable and see if there’s anything you can do to make them feel more welcome.”
Dear Eric: Last year, my girlfriend “Harper” broke up with me. I was in my first year of college; she was a senior in high school.
Harper admitted that she had recently fallen into a substance and alcohol abuse problem while in our last month of our relationship. When I asked if I could help now, she told me that I was a “fixer” and “she did not want to fix these issues.”
Recently, mutual friends of ours (also seniors in high school) have reached out to tell me that the addiction has gotten worse and asked me for help on what to do.
I suggested an intervention with friends but, since these kids organizing the intervention are just seniors in high school, I also offered to speak to Harper’s parents.
When I told my family, they all unanimously told me I should stay out of it and not get involved.
I know she also told me to stay out of it, but don’t her parents have a right to know what’s going on?
Am I even the right person to get involved or would I just look like the crazy ex-girlfriend?
– Caring Ex
Dear Caring: Harper and your family have been very clear. Inserting yourself is only going to complicate things for Harper and for you.
Many people who have “fixer” tendencies would do better asking themselves what a “helper” would do. Helping often starts (and sometimes stops) with the question “do you want my help at all?”
Kaitlin Kindman, LCSW, of Kindman & Company, told me, “ There are boundaries here and it’s not OK to cross them. A letter to Harper may be a good way of expressing what’s true for the letter writer, respectfully. The letter writer can put in their own words what it feels like to see this person decline in this way.”
Lean on your support system to help you step back with love and care for yourself.
You can give that letter to your friends to deliver but run it by a trusted family member first.
Ask your parents if they’d feel comfortable reaching out to Harper’s parents. And accept the answer they give you, even if it’s “not at this time.”
Lastly, before your friends stage their intervention, they should get guidance from trained professionals at SAMHSA’s national helpline – 1-800-662-HELP – or on SMART Recovery’s website, which has resources for concerned families and friends.
(Send questions to R. Eric Thomas at eric@askingeric.com or P.O. Box 22474, Philadelphia, PA 19110.)